3-year-old with rare genetic disorder going to prom
CINCINNATI (Sydney Benter) - Angel Martin from Lebanon has a very rare genetic disorder called Infantile Neuroaxonal Dystrophy, or INAD.
It's the same disease that led to her sister Layla's death August 2015. It causes progressive loss of vision, muscular control, and mental skills. Many children are diagnosed when they're young and die between 5 and 10 years of age. Both of the girls' parents are carriers of the gene that led to the disorder, but they didn't realize it. The couple has another child together. He's been tested and does not have the disorder nor is he a carrier of it.
Layla was just 4-years-old when she died. Christina Martin, the girls' mother, says Angel is regressing just as quickly as Layla did.
"We live and watch her just--things slowly disappear but we don't realize how fast it went away until we start looking at pictures or videos that people have taken," she said.
Martin says her youngest daughter doesn't have much time left so they're making the most of it. They've gone to Disney World with the Make a Wish Foundation and they went cruising on a B&B Riverboat. The latest item to be crossed off Angel's bucket list is a trip to prom thanks to the Tim Tebow Foundation.
"It's a lot harder than you think to try on dresses on a child that pretty much has no mobility . . . But it was exciting and kind of emotional to be able to pick out her dress," says Martin.
Angel's prom dress was donated, as is the limo that will take her to the dance on February 12.
"I am very grateful and we have been truly blessed with people wanting to do things for them," says Martin.
The family has set up a GoFundMe page to help cross more things off Angel's bucket list. CLICK HERE to donate.