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Walk held to help those suffering from rare skin disease

A walk to help those suffering from what is known as “the worst skin disease you’ve never heard of” was held on Saturday, May 13. (Photo: WKRC)

CINCINNATI (WKRC) – A walk to help those suffering from what is known as “the worst skin disease you’ve never heard of” was held on Saturday, May 13.

Epidermolysis Bullosa, or EB, is a rare genetic disease that makes a person’s skin as fragile as a butterfly’s wings.

The walk was started by a west side Cincinnati family, the Kissell’s, who have two children with EB. Five hundred people showed up to the 10th anniversary walk at Miami Whitewater.

More than $30,000 was raised.

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