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Medical Edge: Children with Trunk Disease

NORWOOD, Ohio (Liz Bonis) -- A mom from Norwood asks for the community's help to fund a cure for children born with a rare condition which raises the odds of skin cancer.
 
Christian James is much like any 17-month-old baby boy except he has spent a lot of time in a hospital bed in the last year.  He was born with a giant congential myocystic nevus.  It's a condition which covers part of his lower body with cysts and dark pigment.

Since his birth Christian's mother, Tanya Kennedy, has been a mom on a mission.  She wants the public to learn a little bit more about this condition and more importantly, wants others to get involved.  The community can get T-shirts and bracelets by going online and Tanya also asks that people pray.

"Obviously it's very, very rare.  But just because the number is low doesn't make it any less important and I just thought, 'I am going to do something,'" Tanya said.

T-shirts and bracelets are being used to raise money for helping all babies, not just Christian, who are at higher risk for skin cancer.

"There is basically nothing for melanoma, period.  Not just 'nevus babies' as we call them but children in general," said Tanya.

And Christian is doing something big too, "He's been on several chemo therapies, none of which have been tried on a child as young as Christian; none of them.  He is the youngest to ever experience the chemo that he is on right now," Tanya explained.

He's a pint sized pioneer proving you are never too young to help change the world!

CLICK HERE for a link to Christian's web site to help fund a cure for babies with this condition.



Follow Liz Bonis on Twitter @lbonis1 and LIKE her on Facebook

VIDEO HERE
 

 

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